It's hard for some children to gain weight, so they must take pancreatic enzyme supplements with meals and snacks to help their digestion. Care for the healthy CF child can take up to 1-2 hours a day. SUPPORTING YOUR LOVED ONE WHO HAS A CHILD LIVING WITH CYSTIC FIBROSIS By Siri Vaeth-Dunn For many, the diagnosis comes after a long time of feeling frustrated and helpless.
A guide to give family members when they ask, "What can we do to help?" Cystic fibrosis (CF) is one of the most common and serious genetic diseases in America.It's important to remember that every child with CF has CF genes from both the mother and the father.The CF gene is common (one in 28 Caucasian Americans carries the gene) and marriages between carriers occur frequently (about one in every 400 marriages). Other children could receive a single CF gene from just one parent and become a CF carrier.Their daily care and treatments can take a lot of time.
The treatment of CF varies with most children; but many will need to clear the thick secretions from their lungs. There are several types of lung clearance therapies.Families go through many emotions Besides the shock of diagnosis, parents new to CF may be overwhelmed by all there is to learn to give daily care, including respiratory therapies, medicines, and nutrition supplements. One parent may want to learn all about the disease while the other may be too depressed to learn more. Some parents may have to rethink their work, daycare, vacation, school, insurance, travel, and finance plans. Anti-inflammatory Something that stops swelling Antibiotics Medicines that kill bacteria (not viruses) Bronchodilator Medicine that opens and relaxes the lungs to aid breathing.They may feel pressure to become CF experts too quickly. Use these ideas as a guide when your loved ones ask what they can do to help. Carrier Someone that has one CF gene instead of two.Chest physiotherapy (CPT) involves clapping on the child's back to loosen lung mucus so that the child can cough it out.The Vest is a machine that is worn which vibrates the mucus loose.Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, Maryland 20814 org Cystic Fibrosis: A Guide for Patient and Family by Daniel M. They do not have CF but can give it to their child. Ducts are found in organs, organ systems, and glands.